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Dec. 19th, 2011 03:11 pm![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png){kind=small}
silver_sunI owe loads of replies for comments, posts etc and I really will try to get back to you all.
This is a brief what's going on kind of thing. I posted a couple of weeks ago to day my husband had had a couple of seizure kind of things (still not sure what to call them as doctors have been particularly unhelpful - a week to get an appointment, where they didn't seem to want to believe him that they'd happened - they actually asked him if he was sure it wasn't just a bad dream. Then another 5 days to get a blood test - which we'll get the result of in the new year because they obviously don't see it as being that urgent.)
Anyway, last night he had another one. Little one had just wandered round into our room, because he'd kicked his duvet off and was cold, and had just climbed onto the bed when it happened.
I picked up Alex, and just had to hold onto him, so he didn't climb back on the bed. Seemed to go on for so long, but probably only 10 - 15 seconds or so.
Alex seemed oblivious to what was going on, in the way a half asleep two years olds can be, and I'm glad he was.
Husband is okay - but he let on this time that he's fully conscious of what is going on while it happens - I can't even begin to think how scary that must be.
Him and little one fell asleep again soon after, but I couldn't, and I feel like I've been shaking ever since - and it happened at 4 in this morning.
He couldn't get another appointment, and he says he'll leave it until after Christmas.
as we're going away over Christmas to his relatives in Scotland, so I won't be online at all from about Wednesday this week to Monday next week.
So this is what is going on. I know it seems stupid but I'll still be posting fic, as really need the distraction of writing right now.
This is a brief what's going on kind of thing. I posted a couple of weeks ago to day my husband had had a couple of seizure kind of things (still not sure what to call them as doctors have been particularly unhelpful - a week to get an appointment, where they didn't seem to want to believe him that they'd happened - they actually asked him if he was sure it wasn't just a bad dream. Then another 5 days to get a blood test - which we'll get the result of in the new year because they obviously don't see it as being that urgent.)
Anyway, last night he had another one. Little one had just wandered round into our room, because he'd kicked his duvet off and was cold, and had just climbed onto the bed when it happened.
I picked up Alex, and just had to hold onto him, so he didn't climb back on the bed. Seemed to go on for so long, but probably only 10 - 15 seconds or so.
Alex seemed oblivious to what was going on, in the way a half asleep two years olds can be, and I'm glad he was.
Husband is okay - but he let on this time that he's fully conscious of what is going on while it happens - I can't even begin to think how scary that must be.
Him and little one fell asleep again soon after, but I couldn't, and I feel like I've been shaking ever since - and it happened at 4 in this morning.
He couldn't get another appointment, and he says he'll leave it until after Christmas.
as we're going away over Christmas to his relatives in Scotland, so I won't be online at all from about Wednesday this week to Monday next week.
So this is what is going on. I know it seems stupid but I'll still be posting fic, as really need the distraction of writing right now.
![[identity profile]](https://www.dreamwidth.org/img/silk/identity/openid.png){kind=small}
no subject
Date: 2011-12-19 05:03 pm (UTC)seems that the calmer my life is, the less writing I do ...
Hope the doctors get to the bottom of what's causing the seizures and can come up with some effective treatment ... I can't imagine how scary it must have been for you ... and having to deal with a little one at the same time can't have been easy ... hold in there and accept any support offered and don't be afraid to ask for help ...
I'm not a medical doctor, but to me the fact that your husband is conscious during the seizures could be an encouraging sign, better than blacking out ... and also something that you can respond to, knowing he is aware, means that any comfort you can offer will be heard ....
take care and I do hope his relatives in Scotland are supportive and help take the weight off your shoulders so you can help your son enjoy the holiday ...
best wishes, Angsty xxxxxxx
no subject
Date: 2011-12-19 05:39 pm (UTC)And I fully understand the need to "continue". I took the task of being the 'tech' help for a French fan-website about the Whoniverse not long after my mum passed away, because I needed something to occupy my mind a bit that was not related to everything that happened that year.
no subject
Date: 2011-12-19 06:19 pm (UTC)no subject
Date: 2011-12-20 08:16 am (UTC)However, I'm a nurse and I'm really concerned that this is happening and you're not getting any doctors taking much notice. I don't know what it's like where you are, but what would have happened if you'd called an ambulance the other night? It's what I would have done here, but we do have a free ambulance system here.
If you call an ambulance, even if the seizure was over, he would have been thoroughly assessed and you'd have the episode on record. If he'd still been disorientated/altered they'd have taken him in, and then.... you're in the system and something is likely to happen.
I don't know what your system is like, but when someone is seizing, when this is something new, I'd be concerned enough to be calling the ambulance and getting professionals involved, right then.
Good luck with everything. I'll be thinking of you.
lots of love
McP